Welcome to the website of the Dyskeratosis Congenita Outreach Network. We consider ourselves to be constantly changing and evolving because as new information becomes available we hope to be able to post it. Our network and website are designed to provide a source of information, support, and hope for families affected by DC. In addition to basic facts about the disorder, we are trying to offer a place where families can register for a national database, discover new contacts in the medical community and share personal experiences with others facing similar challenges. We also hope to supply up to date news about potential breakthroughs in research and treatment of DC.

We welcome any feedback about our design and content. Please direct any communication to snaca6@aol.com and include DC in the subject line.