Welcome to the website of the Dyskeratosis Congenita Outreach Network. We are currently under construction, so while most of our links are up and running we are still working on the "Related Diseases" link. Our network and website is designed to provide a source of information, support, and hope for families affected by DC. In addition to basic facts about the disorder, we are trying to offer a place where families can register for a national database, discover new contacts in the medical communty and share personal experiences with others facing similar challenges. We also hope to supply up to date news about potential breakthroughs in research and treatment of DC.

We welcome any input or comments into our design and content. Please direct any communication to snaca6@aol.com and include DC in the subject line.