Welcome to the website of the Dyskeratosis Congenita Outreach Network. We consider ourselves to be constantly changing and evolving because as new information becomes available we hope to be able to post it. Our network and website are designed to provide a source of information, support, and hope for families affected by DC. In addition to basic facts about the disorder, we are trying to offer a place where families can register for a national database, discover new contacts in the medical community and share personal experiences with others facing similar challenges. We also hope to supply up to date news about potential breakthroughs in research and treatment of DC.
Our mission is to provide information and support services to families affected by Dyskeratosis Congenita worldwide, to encourage the medical community's research in finding causes and effective treatments, and to facilitate improved diagnosis by educating medical providers.
Disclaimer: Medicine is a constantly changing science and not all treatments are clearly established especially with such a rare disease. New research changes drug and treatment therapies daily. The authors, editors, and publisher of this website have used their best efforts to provide information that is up-to-date and accurate and is generally accepted within medical standards at the time of publication. However, as medical science is constantly changing and human error is always possible, the authors, editors, and publisher or any other party involved with the publication of this article do not warrant the information in this article is accurate or complete, nor are they responsible for omissions or errors in the article or for the results of using this information. They are also not responsible for any of the statements made by individuals posting their own stories or experiences on this site.
Dyskeratosis Congenita Outreach, Inc.
May you never be alone on your journey...
